Harrogate mum shares daughter’s brain tumour battle

A Harrogate mum has shared how her daughter overcame a brain tumour after being diagnosed aged two.

Marnie Downie-Keally, now seven, was diagnosed with a type of brain tumour called low-grade pilocytic astrocytoma in March 2017.

She underwent surgery to decompress cysts that were causing a build-up of pressure in her head, and also to do a biopsy.

In late 2018 after an MRI scan, Marnie began a course of chemotherapy that lasted 18 months.

Marnie Downie-Keally

Marnie having fun

March is Brain Tumour Awareness Month, which raises money for research to find a cure for brain tumours.

Sally Downie said:

“There had always been something that wasn’t quite right and we had been back and forth to the GP with various things from swollen gums to strange jerky movements, but it always got put down to a virus.

“Marnie had never been a great sleeper, waking every couple of hours and then towards diagnosis, she was waking saying her head hurt and being sick. Finally a CT scan was done and that was when we found out she had a brain tumour.”

Enjoying life

Marnie is now doing well after finishing her treatment in June 2020. She is back at school and enjoys playing sports including football, gymnastics, paddle boarding and swimming.

Ms Downie said:

“Marnie’s last six-monthly MRI scan in January showed all is stable, and the doctor was very pleased with her progress. If all is well at her next scan in July, Marnie will move to yearly scans.

“She’s really happy that, now that her portacath is out, if she gets a temperature she doesn’t have to go to hospital to be checked. She’s doing really well, and is really enjoying being at school. She’s doing lots of activities, including football, gymnastics, paddle boarding and swimming.”

Marnie enjoys paddle boarding.

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Vital support

Marnie and her family have been supported by Candlelights, a Leeds-based charity that works with child cancer patients and their families across Yorkshire.

Candlelighters supported Marnie and her family right from their stay at the hospital, providing them with practical support and entertainment on the wards, wellbeing therapies, trips out and a holiday, as well as financial support.

Ms Downie added:

“There are far too many things to list that Candlelighters have done for us since Marnie’s diagnosis and unless you are being supported by them I don’t think you can ever fully appreciate what they do.

“The support provided by Candlelighters has been amazing for our wellbeing. There’s always a friendly face offering a cup of tea and a chat as well as endless entertainment and support for the children.”

To donate to Candlelighters visit this page.

Harrogate school fundraiser raises over £500 for Ukraine

St Robert’s Catholic Primary School in Harrogate has raised £504.98 for a Ukraine humanitarian appeal by selling crafts and old school uniforms.

St Robert’s has a large number of Eastern European children so the school wanted to do something to help at such a difficult time.

Mum Catherine Maguire made Ukraine-inspired crafts, including painted stones, cards, bookmarks, ribbons, pom-poms and cupcakes.

The school also donated all proceeds from a school uniform sale held at the same time to the Ukrainian disaster appeal run by the Catholic aid agency Cafod on behalf of the Disasters Emergency Committee.

Some of the crafts that were on sale

Ms Maguire said:

“It’s about showing our support for them and their families. It’s not just about raising money”.

The school also created a prayer tree where children could write prayers on a sunflower and hang them.

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Headteacher Jill Collins added:

“St Robert’s Catholic Primary has lots of children from different countries and especially eastern European countries. We want to extend our love and support to our families who have relatives in Ukraine and nearby countries.

“The fundraising event is small way of letting people know we are truing to help and support in any way we can.”

Thankful for support

Ukrainian couple Taras and Viktoriia Jakubiak, whose daughter Isabella attends St Robert’s, said they were thankful to everyone at the school for holding the fundraiser, which took place on Friday afternoon.

The Jakubiak family at the fundraiser.

Mr Jakubiak also spoke about his fears for close family members who are encircled by Russian forces in Ukraine and unable to flee.

Read the full article here.

Starbeck nurses to embark on mammoth charity cycle ride

Starbeck nurses Andy Dennis and Tracey Hill are to embark on a mammoth 2000km charity cycle ride from Amsterdam to Gibraltar.

The trip is to raise money for a charity close to their hearts, which offers vital medical care for those who need it around the world.

The couple hopes the journey will raise £30,000 for Médecins Sans Frontières/Doctors Without Borders (MSF).

An impressive £115,000 has already been raised for the charity to reach their overall target of £200,000, which was set in 2010.

It’s the third major fundraising effort they have undertaken for MSF. In 2011, Mr Dennis walked from Amsterdam to Barcelona and in 2016, the couple cycled across the USA.

Ms Hill said:

“We are raising money to give to MSF so they can use it to help people who are desperately in need of healthcare. That’s relevant right now as MSF are in Ukraine. We’re trying our best to get the word out to raise as much money as we can.”

Ukraine crisis

MSF’s medical teams act fast to save people’s lives in conflict zones, natural disasters and epidemics and go to where they are needed most.

MSF works in over 70 countries and has health workers in Ukraine at the moment.

Mr Dennis has worked in Uganda, South Sudan and Sierra Leone for MSF

Specialist teams are in hospitals in the war-torn country treating wounded people, providing surgical care, emergency medicine and mental health support.

Mr Dennis said donations big or small are greatly appreciated.

“There’s no such thing as a small donation, it impacts someone somewhere.

“£3 can pay for an oxygen mask, for example. We can’t change the world but you can change the life for the person sat in a clinic and bring them healthcare access they wouldn’t normally have.”

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‘All about grit’

The trip will take three months, which they will break up so they have time to rest and connect with local media outlets to promote the fundraiser.

Mr Dennis is an ICU nurse at Harrogate District Hospital and Ms Hill is a dermatology nurse at York Hospital. Both of their employers have supported them by giving them time off with some unpaid leave.

Ms Hill said the endurance trip will be “all about grit”.

“You find out the core of you, you peel back so much and you know how determined you are. It’s all about grit, can you tolerate being dirty every day? If you find a river, you go for it.”

The couple cycling in the USA in 2016.

Mr Dennis added:

“What Tracey described is the every day life of the people we are raising money for. We are choosing to do this to make a bit of difference.”

Proud Starbeck man

Mr Dennis has a reputation in Harrogate as a caring and compassionate member of the local community.

The proud Starbeck man said, “I’m not Bob Geldof”, but wants to show how anyone can make a difference in the world.

He said:

“I was no achiever but I was interested in biology at school and it was the only subject I was good at. Combine biology with compassion you find nursing at the end. It’s an incredible job, it might not look attractive with jaded looking nurses on the TV during covid, but I’ve travelled the world.”

All money raised for the trip, which they have called Ride To The Rock, will go to the MSF and the couple will pay for all expenses themselves. It will start in May.

They are also looking for corporate sponsors too. You can email Andy at andy4msf@pm.me for more information.

Their websites are www.andy4msf.com and www.thecyclingnurse.co.uk

To donate, visit the JustGiving page.

Harrogate lodges lead bid to make Freemasons TikTok famous

It is an ancient organisation shrouded in mystery, which conjures up images of aprons, arcane symbols and secret handshakes.

However, in an effort to bring the fraternity into the modern era and attract younger members, Freemasons in Yorkshire are attempting to become TikTok famous.

The Province of Yorkshire West Riding has posted two videos on its new account – @wrfreemasons – including a take on the staircase scene from Titanic, set to Celine Dion’s My Heart Will Go On.

@wrfreemasons

If you would like to know more about Freemasonry in Yorkshire, West Riding, visit http://wrprovince.org.uk #freemasons #brotherhood #fraternity

♬ My Heart Will Go On (Love Theme from “Titanic”) – Céline Dion

The second is a TikTok of the famous Masonic aprons, described as “a badge of honour” being packed into a suitcase, with the caption ‘Freemasons wear aprons’. This is set to the track Run, by Becky Hill and Galantis.

@wrfreemasons

Freemasons wear aprons. #freemasons #fraternity #brotherhood #community #clothing #Yorkshire

♬ Run – Becky Hill & Galantis

Both have been filmed by member of Harrogate’s Harlow Lodge David Simister.

He said:

“Obviously we are a secret society, but we are hoping to open it up to a new, younger audience on TikTok.”

Harrogate’s Royal Hall to feature in next video

A third TikTok video which will be a take on the Kingsman movies – complete with bowler hats – is set to be filmed outside Harrogate’s Royal Hall on Saturday.

It follows the launch of a video on the The Province of Yorkshire West Riding’s website last month, which throws light on what Freemasonry is all about.

The film features a number of Freemasons, including a university undergraduate, retired firefighter, former soldier and a financial consultant, explaining what enticed them to join.

It also shows the splendour of a Masonic ceremony, the charitable side of the organisation and, more importantly, the diversity of its members from so many different walks of life and social backgrounds.

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Based on the old West Riding of Yorkshire, the Province has more than 5,000 members and over 180 individual Lodges, and covers an area from Sheffield in the south, to Ripon in the north, Goole in the east and across to High Bentham in the west.

Five lodges in Harrogate

There are five individual lodges in Harrogate, with around 400 members who meet at the Masonic Hall on Station Avenue.

James Newman, who will become the Province’s most senior member at a ceremony held in Harrogate next month, said:

“Freemasonry in Yorkshire dates back well over 200 hundred years and, in a nutshell, it is about making good men better.

“Our members range in age from those in their late teens and early twenties to those who are in their nineties and older and they hail from many different professions, ethnic backgrounds and religions.’’

Mr Newman said charity was at the heart of Freemasonry, with the Province of Yorkshire giving more than £200,000 to a variety of local causes each year, including schools, hospices, youth organisations and community groups.

Harrogate district community groups encouraged to apply for £2,500 grants

Groups and organisations in the Harrogate district are being invited to apply for grants of up to £2,500 to help support local communities.

The Knabs Ridge Wind Farm community benefit fund helps to fund projects which benefit local people, such as renovations to buildings and new equipment for playgroups.

It has also helped fund public Internet and computers at Hampsthwaite Memorial Hall.

The fund is aimed at organisations in Hampsthwaite Felliscliffe, Hampsthwaite, Birstwith, Norwood, Darley and Menwith, Haverah Park with Beckwithshaw and Fewston in Nidderdale.

It is available to small local charities and voluntary and community groups in those areas.

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The fund, which is operated by Two Ridings Community Foundation, has grants that are awarded to “enhance quality of life for local residents” and “contribute to vibrant, healthy, successful and sustainable communities”.

RWE Renewables, which set up the fund, said:

“The Knabs Ridge Wind Farm Community Fund is designed to help voluntary organisations, community groups and small charities and other types of not for profit organization that support charitable, educational, community, environmental, energy efficiency or general community amenity projects in the local area.”

Those applying for the grant must be a voluntary organisation, community group, small charity or other type of not for profit organisation and have been in existence for six months.

They must also have a governing document or a constitution. The deadline for applications is May 9, 2022.

More information can be found on the Two Riddings Community Foundation website.

Harrogate charity furnishes homes for domestic abuse survivors

A Harrogate furniture reuse charity has helped to furnish four properties for female survivors of domestic abuse.

Essential Needs, on Leeds Road, has partnered with Independent Domestic Abuse Services (IDAS), which is the largest specialist domestic abuse charity in Yorkshire.

The homes in the Harrogate area will be used by women moving away from violence and abuse.

Essential Needs provided four of each of the following items; sofa, bed, wardrobe, chest of drawers, bedside drawer, kitchen table and chairs, coffee table, TV and TV unit, microwave, kettle, toaster and vacuum.

Lee Wright, manager at Essential Needs said:

“Essential Needs wanted to support IDAS as their work is lifesaving and the pandemic has made conditions for victim-survivors even worse.

“It was great to be able to partner in a way that drew on both our strengths as charities, supporting people who really need the help and to give them the best chance of living a life free from abuse and violence.”

Lucinda, a fake name, is one of the survivors that has moved into one of the properties. She said:

“The flat is lovely and homely, it is great to have the freedom to be able to go for walks again. The staff have been really lovely, and kind and it makes me feel safe to know that they are just a phone call away.

“I was so worried about how I would do this on my own but now all my worries about moving have gone away. I am safe.”

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Essential Needs sells donated furniture at low prices at its Leeds Road warehouse.

IDAS said all the properties now have residents that are getting the support they need to recover from their experience and rebuild. It added it was always looking to accommodate and help more survivors of domestic abuse so will likely partner with Essential Needs again.

Mel Milner, project officer for IDAS dispersed housing and safe havens in Harrogate and district area, said:

“We are very grateful for the generosity of our partners at Essential Needs. When survivors escape abuse, it’s so important that it represents more than just a roof over their heads, so we work hard to furnish our properties with everything you would need to have the best fresh start.”

Harrogate nurse to raise money through 24-hour gameathon

A Harrogate nurse has pledged to game non-stop for 24 hours to raise money for Medecins Sans Frontieres, a charity also known as Doctors Without Borders.

Andy Masters will start his gameathon at 10am next Saturday, February 5, and hopes to raise £1,000 for the medical charity.

Mr Masters has worked as a nurse for 30 years and began working at Harrogate District Hospital seven years ago.

The charity offers medical assistance in areas affected by conflict, epidemics and natural disasters. Mr Masters said he’s known doctors who have worked with the charity and seen first hand how necessary its help is.

Mr Masters said:

“It’s a highly respected charity and they go and help those in real need in areas others don’t. I just want to do a little bit to help them.

“Last time I raised over £1,000 so if we can get close to that it would be great, but anything is amazing.”

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He is a keen gamer and said he will switch between multiple games to help keep him awake. The whole event will be streamed on his Youtube and Twitch accounts.

To donate, click here.

Inquest hears tributes to bikers killed in head-on collision in Masham

The families of two bikers who died in a head-on collision near Masham have paid tributes at a joint inquest into their deaths, which concluded today.

Paramedics certified Martin Ragg, who was from the Ripon area, and Michael ‘Mick’ Lynas, who was from the Thirsk area, dead at the scene of the collision on the A1608 on Sunday, April 25 in 2021.

Coroner Oliver Longstaff submitted written evidence and questioned a collision investigator from North Yorkshire Police at the inquest.

The inquest heard how the crash happened at a blind summit close to the Brymor Ice Cream parlour and that Mr Ragg had been attempting to overtake a car before he moved one and a half metres into the oncoming lane before the crash.

Both men died as a result of injuries sustained in the crash. Mr Longstaff said:

“The point of an inquest is not to apportion blame but to determine the facts which lead up to the deaths.

“On the balance of probabilities the collision happened in the northbound carriageway and Mr Ragg was on the wrong side of the road.

“What strikes me is, from listening to what both families have said, that these two men would have got on quite well and become good friends if they had ever met.

“I hope it is some comfort to know that they both died instantly while doing something they loved.”

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Tina Lynas, who was the wife of Mick Lynas, said:

“Mick was passionate about motorcycles — in fact, much to the shock of my mum, he picked me up for our first date on a motorcycle. He was a great rider and never a risk taker.

“He collected motorcycles and at the time of his passing he had 13 in his possession. On the day of the crash he went out with his daughter Eve on a separate bike to meet his friends in Masham. He was then going to see family in Middlesbrough.

“I was just getting to leave to meet him there when I took a call from Eve. Mick’s passing has left a huge hole in our hearts. He was a loving man, full of life. He was community driven and would do anything for anyone.”

‘Lives shattered in an instant’

Jayne Ragg, who was the wife of Martin Ragg, said:

“Our lives were shattered in an instant. Martin often left early for his trips and did not want to wake me up when he headed out. So I didn’t even get to say goodbye to him.

“He had a fantastic sense of humour and he was a larger-than-life character who loved his family with all his heart.

“We have raised more than £7,000 for Brake, a road safety charity, and Yorkshire Air Ambulance. We also sent £2,000 to the Yorkshire Air Ambulance separately.”

Harrogate theatre chair on the panto, scaffolding and being ‘cautiously optimistic’

Cancelled shows and a huge roof renovation have made the last 18 months “very difficult” for Harrogate Theatres but the chair says it is going into 2022 “cautiously optimistic”.

Knaresborough-born Deborah Larwood, who has been visiting the theatre for years, worked in the arts sector for over a decade before she took a seat on the board four years ago. She then became chair in December 2019.

Harrogate Theatres is a charity that hosts events at Harrogate Theatre, Royal Hall and Harrogate Convention Centre.

Its biggest challenge during the pandemic has been generating enough income to cover costs whilst being unable to get on stage.

It has held online workshops, socially distanced theatre and launched its HT Together fundraising campaign.

Ms Larwood said initiatives like these and grants from the likes of Arts Council England have been crucial to the theatre’s survival and allowed it to plan for upcoming events.

Cinderella ends today

The biggest event for the theatre each year is its annual pantomime. As Cinderella comes to a close today, after running since November, Ms Larwood said she was pleased with its success although it is unclear how well tickets sold compared with previous years. She said:

“People’s habits have changed during the pandemic and some of our usual audience members still aren’t comfortable in the auditorium. We still had huge success in terms of ticket sales, but it was different especially with some schools choosing to cancel their trip.

“When we lost the panto in 2020 it was a significant worry because we rely so heavily on that revenue we earn.”

Some of the cast of this year’s pantomime, Cinderella. Photograph: Karl Andre

She added tickets for this year’s pantomime, Aladdin, are already selling with a number of schools also choosing to book.

Roof completion date still set for March 

One of the biggest projects undertaken in the last 12 months has been the roof renovation. The project has been managed by Harrogate Borough Council, which owns the building.

Work began in May last year and with multiple setbacks due to covid and building materials it is now due to be completed by March.

Ms Larwood said workers on site were “determined” to stick to that date.

The theatre roof during works in June 2021.

The board has been trying to recruit new trustees. Last year, Ms Larwood, said multiple trustees came to the end of their tenure, which gave the opportunity to bring in new people and expertise.

She said:

“The pandemic allowed us to refocus and its exciting to hear from new people who are equally as passionate as us about the arts.”

So far the charity has added Fiona Hunt to its board but plans to speak to more potential new trustees after panto season.

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‘Necessary evil’ to make people redundant 

During the pandemic the theatre made staff redundant in an attempt to remain open. Ms Larwood said it was a “necessary evil”.

Long-term closures in 2020 and 2021 meant a big loss in revenue. Ms Larwood said despite the grants, cuts had to be made.

However, the charity hopes to start recruiting again this year. She said:

“We had terrible levels of redundancies but we had to make sure we made it through the other side. Recruitment will begin in earnest, but it’s all about striking a balance. We need people but we live in a time of rapid change and hiring too quickly is a big investment to lose.

“Our core team has been amazing throughout, doing the job of a team normally two or three times its size. It’s now time for us to bring in new people as we move into a busy year.”

John Shackleton, 83, hoping to deliver one final ambulance to Eastern Europe

83-year-old Harrogate legend John Shackleton has a twinkle in his eye when he considers one last trip delivering ambulances to Eastern Europe, something he’s done through his charity Aid to Eastern Europe for over 30 years.

“My daughters say ‘come on, think of everyone else’, but I’ve been kicking my heels for the last two-and-a-half years due to covid. I’m getting older and the years are going by quickly.

“I have enough money to go to Amsterdam to buy an ambulance and I’ll be in Georgia within a week or two, but do I take the chance? It’s a big decision. I really want to do it.”

If you’re not familiar with John’s work, he’s been delivering ambulances to hospices and hospitals in Eastern Europe since 1990. He started after seeing upsetting TV images of orphans in Romania following the death of dictator Nicolae Ceaușescu.

He’s since delivered 38 ambulances to an exhaustive list of countries, including Albania, Kazakstan, Armenia, Slovenia and Bulgaria.

To raise money to buy the vehicles, John chops down trees, cuts lawns, mends bicycles — anything to raise the £12,000 to £15,000 it costs to purchase an ambulance — which he usually buys from auction in Amsterdam.

John chopping down trees to raise money for an ambulance. Credit – The Ambulance Man (Facebook).

He said:

“I fly into Amsterdam but they sometimes take the stretcher out and make you pay extra. Invariably, when we tell them its a charity we get around that!

“We then bring it to Harrogate, fill it with medical supplies and find two co-drivers. We sleep in it, drive day and night, and deliver it right into the sticks, miles away from civilisation.

“We leave the ambulance, hitch hike to the nearest international airport, come back to Harrogate and do it all over again.”

Harrowing scenes

John is moved to tears when he describes the harrowing scenes of human suffering that he’s witnessed, but is comforted by the knowledge that he has helped people less fortunate than us in Harrogate.

Many of the countries he’s visited have been riddled with poverty after the fall of the Soviet Union.

In Ukraine. Credit – The Ambulance Man (Facebook).

He said:

“When I think back to some of the places I’ve been to it is very hard. I don’t dwell on it but sub-consciously it’s there.

“In the early days, we’d get to know the kids, there’s always one you’d get to know more who might smile a lot or give you a cuddle. You’d ask where he is, and they’d say, ‘oh, he died last night, he’s buried over there’.

“It was a building site and they’d take them out the back and bury them like a dog. They had nothing. You wouldn’t be human if it didn’t affect you.”

Show no fear

John has endured the trials and tribulations of the road and has clocked up tens of thousands of miles. He’s faced bribes, bandits and gunfire.

In Turkey, he said he expected to have to pay a bribe but the police wanted him to cough up the value of his ambulance, so he refused.

He and his co-drivers were thrown in an underground jail cell with a bucket for a toilet.

“They locked us up for 36 hours. I’d already given Turkey two ambulances after they had an earthquake! I was really annoyed they had the audacity to lock us up.”

John said his team was beginning to panic.

“You must show no fear. I got to the boss man, nose to nose, screaming at him, he eventually freed us. That was a little bit scary.”

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The right stuff

Driving through Russia, John was warned of bandits and not to stop during the night. He came across a roadblock with lights flashing so he had to think quickly.

“I thought, I won’t stop here. So I put the foot down and the blues and twos on.

“They jumped out of our way and fired at us. But they must have been firing in the air. A man that can’t hit an ambulance is not worth holding a gun!”

John in Poland. Credit – the Ambulance Man (Facebook).

John has had UK police officers, and his grandkids, as part of his crew, although not every co-driver that has signed up has joined with the right stuff.

He added:

“I advertised for a driver once on eBay. I said the highest bidder can come along. A professor from Cambridge University paid £700.

“But all he wanted do to when we drove through France was go to the vineyards and taste the wines. He got really ansty with me, I said ‘why did you volunteer? We’re humanitarian, this is not a holiday!'”

Helping others

When the Stray Ferret visited John at his house in Harrogate, he had his head under the bonnet putting a new engine in his kit car, which he first built over 50 years ago. He said by spring he’ll have it going again.

John has been a bomb disposable expert, mountaineer, greengrocer, a housing fixer upper and he ran an art studio. His rich life experience has given him a practical and positive outlook.

“I’ll have a go at most things. The Egyptians built the pyramids, if a man can do that, most of us can do anything if we put our minds to it. 

“Some people are hesitant when opportunities arrive. I invariably say give it a go, if you have the right mentality, you will succeed.”

Most of all, John is known for putting other people before himself, and as the Stray Ferret left his home, he told us he’s pencilled in September as a possible date to deliver his 39th ambulance to those who desperately need one in Eastern Europe.

To donate and help John buy a new ambulance, email johnshackleton@aidtoeasterneurope.co.uk