The parents of a Harrogate teenager with cerebral palsy are aiming to raise £10,000 to fund a “life-changing” piece of equipment.
Piran, 15, is non-verbal and lives with agonising muscle spasms which he is unable to explain to his parents, John and Maria Smith.
The family is hoping to buy a Tobii Eyegaze, which would recognise Piran’s eye movements and enable him to communicate, as well as using learning apps and social media.
Maria told the Stray Ferret:
“It’s something he has used over the years, but it’s not very easily funded by the local authority. We’ve had a trial and borrowed it in the holidays, and he’s used it at school.
“They’re a lot of money, but they’re really worth it. If you can imagine never having told anybody anything, shared any feelings or concerns – even choosing is really difficult for him.
“It’s literally going to give him a way to share his personality with the world. It’s really life-changing kit.”
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Piran was diagnosed with cerebral palsy after being born three months premature.
He was able to speak when he was a toddler, and could walk with a frame when he was young. He attended Willow Tree Primary School up until year six.
Now a pupil at Springwater School in Starbeck, Piran especially enjoys swimming.
However, as his body as grown, he has lost some of his abilities and is now in a wheelchair. He has also developed other health issues over the years including dystonia, which gives him cramps and spasms throughout his body.
Maria said:
“He isn’t in a good way physically, but he shines like a little diamond. He is the most bubbly, cheeky, wonderful boy, and he has a wicked sense of humour.
“At Willow Tree, he made friends with everybody. He loves music – he listens to everything from The Doors to Iron Maiden to Pavarotti.”
The couple’s first fundraising event was a walk of more than 40 miles, covering the Harrogate and Knaresborough Ringways.
It took place last weekend, during heavy thunderstorms, and saw them camp out over night in a two-man tent along the route.
Maria said:
“It’s a long, tough, hard battle as a family. You’re doctor, physio and everything else – you wear lots of different hats through the day. You do feel quite lonely, and every disabled family feels the same.
“For the first walk, everyone said, ‘we’ll do it with you’, but we wanted to do it alone.”
However, there are plans in place for a group walk in September, this time covering just 20 miles, and Marian and John have opened it to anyone who wants to take part.
Next year, she’s hoping to draw on her experience in motorsport to organise more events to raise funds and awareness for people with conditions like Piran.
To find out more about upcoming events, visit the Walk for Piran Facebook group. To donate to the family’s fundraising, visit the Go Fund Me page.
Local disability charities work together on mosaic projectTwo Harrogate based disability charities have worked together to create a mosaic that will displayed at a new training centre.
Artizan International and Harrogate Skills 4 Living (HS4L) both work to provide care and support to disabled people.
The mosaic was made by disabled artists from Artizan, a Harrogate-based charity that runs arts and crafts workshops and provides training to disabled people.
The ceramic-tile piece has been given to HS4L for it to display outside its new training centre.
HS4L bought the training centre in early April and has been using the space to run education programmes and internships for young people with learning disabilities.
Hadyn Moorby-Davies, HS4L’s chief executive said:
“It’s wonderful to collaborate and work with people who share the same vision, values and aspirations as we do – to help disabled individuals overcome the barriers they face and lead fulfilled lives”
“The beautiful mosaic will look stunning on the bare brick walls of our new training centre.”
Mr Moorby-Davies added that the theme of the mosaic, ‘Many Hands’ encompassed the charities’ ethos of “supporting each other to achieve the best possible outcomes for all.”
Artizan has become a local specialist in mosaics and in 2022 created the giant Harrogate letters displayed on the side of the Boots building in the town centre.
Liz Cluderay, Artizan’s UK director said:
“We have been delighted to create this beautiful mosaic for our friends at HS4L for them to display in their fantastic new training centre – North Barn.
“Working together on projects as organisations serving the needs of our disabled community will help us to reach more people that will benefit from our services.”
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Harrogate charity to put on conference celebrating disability
An event aiming to celebrate disability and promote living life in the way people wish will come to Harrogate next month.
The Slightly Alternative Seminar is organised by Disability Action Yorkshire (DAY) and will see high-profile names tell their own stories of life as a disabled person.
‘Punk Chef’ Scott Garthwaite and TEDx speaker Pippa Stacey will take to the stage, along with Bafta-winning screenwriter, director and journalist Charlie Swinbourne.
Disability Action Yorkshire chief executive Jackie Snape said:
“We are so excited to be holding our second Slightly Alternative Seminar. The feedback from our first event was amazing and we have built on that to bring together some fantastic speakers who have some remarkably interesting stories to tell. We are looking forward to a wonderful day.”
The event takes place at Pavilions of Harrogate on Friday, May 5, from 10am to 3.30pm.
Ms Snape said the charity is aiming to grow it year on year, as a unique event for members of the disabled community and people who support them.
She added:
“There are few events aimed specifically at disabled people apart from those selling equipment.
“The people we work with were telling us that they wanted information on a variety of subjects that matter to them, not just where to buy a wheelchair, and we listened and we responded.”
The Slightly Alternative Seminar is free to attend and includes free refreshments. Attendees can attend for all or part of the day.
As well as British Sign Language interpreters on hand, the venue has step-free access and a hearing loop.
To book a place, email Hanne Jackson at Disability Action Yorkshire or call 01423 855420.
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New exhibition at Mercer shows work of artists with disabilities
The Mercer Art Gallery in Harrogate has launched a new exhibition of pieces by local artists living with disabilities.
The World Through Our Eyes features pieces created over the last year by “differently able” artists working with Harrogate-based Artizan International.
The registered charity supports people with disabilities in the UK and in the developing world, through therapeutic arts and crafts workshops, training and social enterprise.
Liz Cluderay, Artizan’s UK director, said:
“Adults living with disabilities in our community have the potential to develop their creativity at Artizan, through our programme of arts and crafts activities, we aim to reduce loneliness and support mental health and increase general wellbeing.”
Artizan hold arts and crafts workshops every day from its town centre premises, overseen and guided by local artists helping to develop their skills and experience of different art mediums.
Hannah Alderson, who is studying at Harrogate College for an MA in Creative Practice, helped to curate the exhibition. She said:
“We’re not just holding the art sessions for the sake of it – our artists are all making real progress and becoming very accomplished in a range of mediums and techniques.
“This is really about the adults with additional needs and celebrating the quality of their work. It just goes to show that they are just as able to create fantastic pieces of art as anyone else.”
The artists, whose disabilities range from visual impairments to learning disabilities, have selected their best pieces of work for the exhibition, which opened on Saturday.
The World Through Our Eyes will run for six weeks at the Mercer Art Gallery, Harrogate. There will also be a private viewing, with the chance to speak with Artizan members, on Sunday, February 5, from 4.15 to 5.15pm.
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Henshaws Beer Festival back this weekend after two year break
Henshaws Beer Festival is back this weekend after a two year absence.
The event, on Saturday and Sunday, is a vital fundraiser for the Arts and Crafts Centre in Knaresborough which works with disabled adults from across the district.
In June 2020 Henshaws announced the centre would be closed for the “foreseeable future” . Almost a year later the charity received a grant from Arts Council England from the government’s £1.57 billion Culture Recovery Fund, which allowed the centre to reopen. Henshaws said it needs to raise £200,000 of non-statutory income a year to keep the centre running.
Henshaws said the beer festival will be bigger and better than ever. Five local breweries have joined forces to present the best of beer, including a specially brewed Henshaws Ale. Wines, gins, cider and low-alcohol beer will also be on offer.
The weekend will also feature sets from a range of local performers and a DJ . There will be a special acoustic stage on the Sunday.
There will be five different types of food and a range of family activities. Daytime family-friendly sessions take place on both days and there is an adults-only evening on the Saturday.
Fundraising development manager Helen Donkin said:
“Ticket sales are going well and we are beginning to get quite excited! The Arts and Crafts Centre offers a unique outdoor setting for the festival, with a large stage area, undercover spaces and outdoor and indoor seating. The event has been incredibly well supported in the past and, given the pressure that all charities are under, we hope for even more visitors this year. During our first event, we welcomed over 750 guests and pulled more than 2,500 pints and this year we want to do even better!
“We are already hugely grateful for the support of our sponsors including our title sponsor, Berwins Solicitors, and from the local breweries taking part, Cold Bath Brewery, Daleside, Harrogate Brewery, Turning Point and Roosters.”
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Martin Whincup, Head of marketing at Berwins, said:
“We’re delighted to be associated with this popular event as it returns from a pandemic enforced absence.
“This festival represents a fantastic opportunity to come together as a community and to raise money for a very important cause – Berwins is proud to support the work of Henshaws in this way.”
Tickets are available at Henshaws Beer Festival 2022 – Henshaws and each adult ticket receives a limited edition souvenir pint glass and two half-pint tokens, while children’s tickets come with a complementary soft drink voucher.
50 years of Henshaws College in Harrogate but much work still to do
As Henshaws celebrates the progress it has made for those with learning difficulties and disabilities in the past 50 years, the current principal believes there is much work still to do.
The Duchess of Kent , pictured, opened the college in 1971 when it was smaller and only for people with visual impairments. The college and attitudes have changed significantly since that day.
Today the charity welcomes a more diverse range of people, including those aged 16 to 25 with a range of sensory impairments, autism, physical disabilities, learning difficulties and specialist healthcare needs.
Coronavirus forced more muted anniversary celebrations, with students learning how to sign happy birthday in Makaton and creating art to express their feelings about the milestone.
Adrian Sugden, the current principal, is proud of the legacy and has big plans for the future. He told the Stray Ferret:
“I think Harrogate has a strong connection with Henshaws. Just in the three years I have been here I have seen that connection only grow stronger. We get much more support.
“It is lovely taking the students into Harrogate. They all wear their lanyards to say where they are from and they get lots of recognition.
“Lots of the local businesses are much more supportive as well. Not as many as I would like, I want to get more companies accepting students for work experience.
“I have seen people’s awareness of disabilities improving. They are starting to see our students as people who can contribute positively even though they have complex needs.”

Jono Lancaster (right) and Principal Adrian Sugden (left) presented graduating students with their certificates.
The last couple of years with coronavirus has been difficult for Henshaws. While the college remained open throughout thanks to the commitment of staff, the charity has struggled.
Last year the Stray Ferret reported how Henshaws made the decision to close its supported living supported living services and residential services, which were taken by North Yorkshire County Council and Homes Together.
Mr Sugden pointed to a problem with the way the college is funded. As it is classed as independent it cannot access government or council funding so when it needs money the only way is through fundraising or increasing fees.
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One of the things Mr Sugden has enjoyed seeing is the increasing number of opportunities for students in Harrogate.
Not only is there Hopkins for those with learning difficulties and disabilities. Harrogate Skills 4 Living Centre opened its Harrogate Chocolate Factory cafe earlier this year and Artizen is also planning to open a cafe. He added:
“It’s really positive to see that progress but sadly we are following America’s lead on this. I am doing a really interesting piece of work with Harrogate College on this at the moment.
“I am also a believer in job carving, where our students could do one type of job which they enjoy at many different businesses. That way our students could make an incredible contribution.
“When you look at the national statistics of people with disabilities going into employment, it’s frighteningly low. If we could improve that in Harrogate the town could become a leading example.
